doctors say he probably wo n't live to see his second birthday because of a fatal genetic illness .
his heartbroken mum jessica and dad andrew mccrae have pledged to do everything they can to make sure the little boy from penrith , in sydney 's west , lives a full life , compiling a 30-item bucket list for their son to complete before he has left us .
he 's now ` very floppy ' , and doctors say he will probably not survive his second birthday .